Just to add insult to injury, a fever

It has been a pretty crappy day for Cora. She's been struggling with a fever all day, and lots and lots of throwing up along with it. That means in addition to her normal labs she has had to have many extras today for blood cultures and all kinds of other tests. She is still working very hard with her breathing, still in heart block, and worse than that, you can just tell she feels awful, and therefore I feel awful, and things just seem a bit awful.

We are still at Stanford, but it sounds like a bed is supposed to open up at UCSF tomorrow. We will see.

Today Jay had to go to Marin for work all day so I had some good quality time juggling all the kids. Let's just say I picked my battles and there was an emphasis on snacks over nutrition, and an abundance of a certain Spider Man costume. We had to keep our visits to the hospital relatively brief because, as I've already explained in previous blog, this quiet environment tends to bring out the beast in my children. But my sister Jen and another friend jumped in to help and spent time with Cora while I entertained the others.

I would like to tell you about some of the moments today, good and bad, but as I write this I am at the hospital again with Cora and she is still having a very hard time. She doesn't so much care about my blog as she wants me to politely ask the nurses to stop trying to catheterize her, and help her go to sleep.

One final thing though: when I was walking with Dom and Cosie between the hospital and RMH for the fourth time this evening and everyone was feeling adequately torched, Dom said, "it's like Dori says mama, 'keep on swimming -- just keep swimming.'" Leave it to Dom to pull out a quote from a movie he probably hasn't seen in a year, just to remind me that he gets it, and that with his four-year-old wisdom he is helping us get through.