A nice, much appreciated, boring day

There isn't a lot to report tonight. It was a rather boring day, although of course in hospital land we've come to sincerely appreciate dull.

Cora had her morning session with the occupational therapist and continues her work on drinking from a bottle. Today she was only interested enough to take about 5ml, but that was better than yesterday when she wasn't interested at all. I guess it is to be expected -- two steps forward and one back. We are told it will likely be several months until Cora can get back to eating entirely by mouth. She still receives her intravenous lipids through her broviac, and it's unclear whether she would be discharged with that, or if it will come out.

Later in the day she had a physical therapy session and worked on her exercises (see photos to fully appreciate the cuteness.) She really has made so much progress already. This morning when I walked in the room she was laying there playing with her hands, which is one of the things the therapist has been working with her on. It's like she was studying outside of class! What a little overachiever. She has been moving and kicking so much more than just a few weeks ago. She seems pretty excited about it all, and of course we are too.

Other than that she mostly just slept today. She seems pretty exhausted by the move and I'm sure her little heart has been working overtime to get her better. Sleep is good. It's really the best way for her to keep gaining weight, which is still what she needs most to do.

Her heart block and rhythm issues continue, and there is a very high likelihood that she has a pacemaker in her near future. That's something that will be investigated in detail in the coming weeks, potentially after she is discharged. She's also still requiring oxygen and there doesn't seem to be a good explanation for that. Still plenty of things to look into, but none of them as catastrophic as what we were facing a few weeks ago.

For that, and for many other millions of things, we remain very grateful.