Monday, July 15, 2013

Thank You, Cora

As I write this, three of my friends are singing Bob Marley's, "Three Little Birds," to Cora, rocking her and surrounding her with love. She is getting so tired now; her body is working so hard. I can see that she is far along her journey.

We are all settled now, having moved into a permanent room back on 7 east. We had planned to move into one of the palliative care suites, but in the end the PCICU doctors wanted us with them, cared for by the same nurses who have loved her every day of her life. The doctors told us it would be their privilege to care for Cora, and they are doing it fiercely and with deep compassion and respect. She is the little angel of 7 east, and they are protective over her and I feel in my heart that they have given all of themselves to her care.

Cora's day has been full of love. Of course her life has been full of love, but especially the day. We had a continuous stream of visitors, family members, family friends, friends of Cora's, friends of mine. Our dear friends, the parents of Cora's little pen pal, drove from Sacramento to see us. My college friends arrived, one by one. There are seven people in the room right now, besides Cora, and it is so silent and graceful. She has hands on her and hearts with her, leading her through her life.

Today we stopped the last of Cora's medications. She is receiving meds to make her more comfortable, but no more twelve medications given at eight different times a day. No more upset tummy. And there are no more monitors at all. Just Cora in her beautifully made bed in her beautifully decorated room.

A friend that came tonight brought a beautiful garland she made that says, "thank you cora."

Over the months, I have often feared the future. I had no idea where our road would lead, what would be around the corner or what more Cora would have to endure. So I am deeply relieved to say with complete confidence to Cora, you will never be intubated again. You will never get another chest x-ray. You will never have another surgery. You will never get another lab drawn. All you have to do is be peaceful.

All Cora's life she has helped others. My friends would write me to ask if they could come see Cora, because they were feeling down and they wanted her to cheer them up. She makes people better and she always has. So tonight I've been telling her that she doesn't have to give anything else. That there isn't a single thing she hasn't already given to me or to the world.

What a beautiful thing to behold. Her life: so complete, so full. I watch in awe as she moves through, inspiring love.

***

I walked away from writing this, and now it all has changed.

Cora Vivienne, Little Lionheart, the finest baby girl I ever knew, passed from this life, very peacefully in our arms and covered in kisses, at 12:25am.

Sweet, sweet baby. I love you so.







50 comments:

  1. Thank you, Cora. Thank you God for the life of this little one and for being with us in all things. Thank you Michele (again) for opening your family's life to so many of us. We are continuing to keep your family in our thoughts and prayers and Cora in our hearts, always.

    ReplyDelete
  2. Rest and find peace, sweet baby Cora. Thank you Michelle for sharing this beautiful journey you and your family have travelled. We have all shared your joy and now walk with you n your sorrow. I know Cora and your story will always hold a little piece of my heart. I continue to hold space for you and pray for you all, especially Cora as she gets settled into her new life, part of which, I suspect, is watching over sweet Dom and sweet Cosie. Peace and love to you all.

    ReplyDelete
  3. Rest in peace now, Cora. You've meant the world to me and everyone who knew you.

    ReplyDelete
  4. There are no words. Just love.

    -Dana, Christopher, Cooper, and Charlotte

    ReplyDelete
  5. Sweet baby Cora, I feel I have lost a little friend. One whom I've never met, but has touched my heart profoundly. Rest peacefully little angel. . My deepest deepest sympathy Michelle to you, her siblings, her father and the rest of your family.

    ReplyDelete
  6. While I can't imagine what you are going through, I am happy that Cora has found peace. Thank you for sharing Cora with us. Seeing the expressions on her face and the love she brought to this world will have a lasting impact. She will forever be in my thoughts as I appreciate every moment, good and bad of being a dad.
    Chris Jorgensen

    ReplyDelete
  7. I am so sorry for your loss, but so relieved to know that Cora was able to slip away in such a state of peace. You did everything possible to make the end comfortable and peaceful for her. Your family is in my thoughts and prayers.

    ReplyDelete
  8. Thank you for sharing your sweet Cora with the world!

    ReplyDelete
  9. I am heartbroken for your loss, in awe of your grace and gratitude in the road the Lord has lead you down, and hopeful that the support of so many friends and family, far and wide, will carry you through your sorrow. May Cora shine down upon you and her father and siblings every moment of every day until you meet her again in Heaven. You thank Cora for being your light, and I thank you for sharing her with us. My truly sincerest condolences.

    ReplyDelete
  10. It's no surprise that your beautiful girl had such a beautiful end. Shedding some tears for you all this morning and hugging my children a bit tighter. Thank you for sharing her journey with us. I hope you will continue to write.

    ReplyDelete
  11. My heart breaks with yours. Praying. Loving.

    ReplyDelete
  12. What an incredible girl and an incredible family. Sharing your journey has been so moving and inspiring and I mourn for your loss. Cora did more than anyone will ever know in her short life, thanks to your words and her courage. I continue to pray for strength for you all.

    ReplyDelete
  13. I have secretly read your blog over the past several months, never commenting, but always coming back to be truly inspired and moved by you, your family, and especially little Cora. You will continue to be lifted high in prayer by myself and so many others as you have for so long now. You are such a loving Mommy and Cora was one very fortunate gal to have you all by her side. While your grief will be incredibly heavy, please know you and Cora truly are an inspiration to so many. Hugs and peace...

    ReplyDelete
  14. May sweet Cora find peace and your family as well. My prayers are with you all. Thank you for sharing your grace and sweet angel with all of us.

    ReplyDelete
  15. My heart aches for your loss. Our deepest sympathies to you and your family. Cora, sweet little angel will forever be a part of our hearts. -Becky & Derek

    ReplyDelete
  16. Sweet Cora, little angel. Your body is at peace now, flying high amongst the other angels; crawling, laughing, smiling, and playing. You have been heavy on my mind and in my heart these past few days. I woke up today hoping that against all odds, a miracle had occurred and I would read that you were getting better. As I am writing this, I realize that in fact, a miracle has occurred. You, sweet girl, with your own heart so sick, have healed the hearts of so many many people. Thank you Cora. Thank you Michele, Jason, Dom and Cosie. Thank you for showing me what pure, raw, love means. Thank you for reminding me to cherish the only things that truly matter, instead of getting wrapped up in the busyness of life. Michele and Jason, tears are flowing strong for you as you walk through the next part of this journey. I only hope that knowing how many people are holding you both in person and in spirit gives you a small piece of comfort at this unimaginable time. You both are such a powerful example of strength, courage, dignity and love. Dom and Cosie, the pictures of you with your baby sister will stay in my mind. Such love and innocence and just plain sweetness. Cora, lionheart. Now its your turn to watch over your family just as they have watched over you. Be free sweet girl! I believe with all my heart that you are in heaven, with a body free of sickness, playing with your pen pal buddy. That thought makes my heart smile. Thank you all for the ways in which you have made me a better person and most importantly, a better mom. Love and prayers.

    ReplyDelete
  17. Cora's little body can now rest in peace, but her indomitable spirit will live on in the hearts of all who love her! Has any body ever touched as many lives from such a small physical universe? I think not!!!! Thank you, Michele, for being Cora's voice - a truly fine voice in a truly fine little girl. My heart's ache is eased only by knowing Cora's life's work continues in all the people she has changed. Thank you, Cora, indeed. Sleep well, little one.

    ReplyDelete
  18. Oh how my heart hurts for your family....while at the same time I feel joy for Cora to be free of medications and surgeries and tubes and wires. How confusing! Thank you. Thank you for taking us on this journey with you. For sharing beautiful Cora with strangers who have fallen in love with her. For reminding me what is important in life. You will be missed Cora, but never ever forgotten...

    ReplyDelete
  19. Cora, thank you and may your spirit angel watch over your siblings and parents as they continue their journey through life on earth; you will never be forgotten.
    Sweet, sweet Cora, I am so happy that you had time without monitors, medications and tests; you deserved being free if only for hours, your way of letting people get even closer to you at the end; why am I not surprised.
    We all love you so much Cora, thank you, thank you for your short time with us and thank you Michele for letting us share Cora's life with you and your family. What a gift you have given so many of us. I hope at some point in the future, you will put your story in a book to share with many other people waiting to understand what love is. God Bless you little Cora, lionheart.
    Many hugs and much love to you all during this difficult time. I will miss her so much, I can't imagine what you are going through but what beautiful months she has had getting to know her brother and sister, Grammie and Papa, friends and family. Thank you God for bringing Cora into all of our lives.

    ReplyDelete
  20. Peace be with you all. My heart hurts and still I am in awe. Thank you for the lessons in love and faith. Much love.

    ReplyDelete
  21. My heart aches for your family. Sweet Cora, may heaven welcome you with open arms. You are loved by many. Thank you Michele for sharing Cora's story with all of us. You have a wonderful family. We will continue to pray for your family.

    ReplyDelete
  22. "[He] offers us the image of a beautiful tapestry. Looked at from the right side, it is an intricately woven work of art, drawing together threads of different lengths and colors to make up an inspiring picture. But turn the tapestry over, and you will see a hodgepodge of many threads, some short and some long, some smooth and some cut and knotted, going off in different directions... God has a pattern into which all of our lives fit. His pattern requires that some lives be twisted, knotted, or cut short, while others extend to impressive lengths, not because one thread is more deserving than another, but simply because the pattern requires it. Looked at from underneath, from our vantage point in life, God's pattern... seems arbitrary and without design, like the underside of a tapestry. But looked at from outside this life, from God's vantage point, every twist and knot is seen to have its place in a great design that adds up to a work of art." --from the book "When Bad Things Happen to Good People" written by Harold S. Kushner

    Now Cora can see the tapestry from the top. What a fine vantage point for a fine baby girl.

    ReplyDelete
    Replies
    1. There is a Jewish saying that life is a tapestry, but no matter how dark the threads, God always includes a thread of grace. (Or words to that effect.) Cora surely is the thread of grace to all who "knew" her!

      Delete
  23. My dearest Bousquet's, I do not know any of you closely howerver, my heart has been traveling with you. Cora's picture has been on the bulletin board at my desk for all these months and she'll be there for a long time to come. I constantly looked at her adorable countenance and prayed for her. She was sent here to make a big mark on this world and through you sharing most intimately she was a powerful catalyst who brought so many people together, from all around the world, united in one big heart. It is as if she gave away pieces of her heart to bring our hearts together.Thank you for the gift of Cora. I will continue to pray for your family as you move through this time of unspeakable grief. Love, Judi Land

    ReplyDelete
  24. My heart goes out to you and your family. Thank you for allowing us to share in the miracle that is Cora. She had a very full, complete life and she was a very loved baby. We should all hope to experience that much love in our lives. You are such a strong mama, and I wish you peace as you find yet another new normal. Cora will not be soon forgotten. I know every decision you made for her was not easy, but the 8 months she was on this earth were the most blessed.

    Jen (Hidalgo) Ratza

    ReplyDelete
  25. Michele, thank you for sharing Cora with us all. Her - and your - story has pierced so many hearts so profoundly. Sending you and your family love and light. ~ gwinn

    ReplyDelete
  26. So much love to you and your family.

    ReplyDelete
  27. Rest in Peace, sweet, sweet Cora. What a beautiful soul. Michele, thank you for sharing your journey with all of us. I am in awe of your grace. I will continue to pray for you and your family. Many hugs and much love to all of you. Peace be with you.

    ReplyDelete
  28. Michelle: I am sorry for your loss and my thoughts and prayers go out to your family. God bless all of you.

    Greg Korte

    ReplyDelete
  29. Michele, what a beautiful tribute to a beautiful baby girl who touched so many, including me.

    Bye, sweet Cora, we will miss you SO much.

    Love, Keith

    ReplyDelete
  30. Michele, thank you for sharing your beautiful, baby girl with all of us, even those of us who have never met you. It has been my honor and privilege to check in on your family, on your Cora, on a regular basis. Thank you to your sweet baby girl for reminding us what truly mattes in this life. Lots of love and prayers to you, your husband, Dom, and Cosie, as you set forth on this new journey, with Cora looking down over you. With much love, from CT, Diamond Cambareri

    ReplyDelete
  31. Rest in Peace sweet Cora. The world is a better place because of your little lionheart. xo

    ReplyDelete
  32. Cora Vivienne, Cora Shebora, C V Lionheart, baby girl of many names - I'm sorry I didn't see you before you left on your next journey but I'm sure you've already assembled a crowd of admirers where you are now. You brought people together in this life so why not in the next? Your mom Michele was your voice to the world and we love what she wrote on your behalf - hopeful, fierce, tired, even funny at times in the midst of struggle, and ultimately accepting of your having to go first where we all must go. You go showered with love.

    ReplyDelete
  33. No baby was more loved and appreciated. Cora was so blessed to be adored by an amazing family, a huge circle of friends, and a loving medical community. Her journey, so eloquently conveyed by you, has inspired us all to be better people and to appreciate life more fully. Michele, you and your family are in my thoughts and prayers.

    ReplyDelete
  34. Dear sweet Cora, may you be covered in light and love.

    ReplyDelete
  35. Dearest Cora,
    Thank you for the daily reminder of what is important in life. Michele - thank you for writing and sharing Cora with the world...I never got the pleasure of meeting Cora, but she did change my life for the better. Thank you from the bottom of my heart. Cora will never be forgotten.
    Sending all my love to you and your family.
    Shayne

    ReplyDelete
  36. Michele, words can't describe the mix of sadness and gratitude I feel for you, Cora, Jason, Dom, and Cosie. Thank you, each of you, for opening up your hearts, struggles, and joys to the rest of us. You have demonstrated so clearly what courage, strength, and most especially love really mean. Keeping you in my prayers.

    Kip

    ReplyDelete
  37. So close...yet so far away...My heart to yours. Blessings and love for your wholehearted love and sharing.

    ReplyDelete
  38. Be at peace, sweet Cora. You couldn't have been more loved.

    ReplyDelete
  39. May peace be with your family forever and always. I have been so moved by the love you have shared with your beautiful baby girl and your loving, radiant & hugely golden heart. What a blessing Cora was for all of us near and far. I began reading your blog back in december and couldn't help but feel compelled to follow her sweet, innocent journey marveled by the obstacles she overcame each day. In this life nothing is promised and you showed us how to appreciate every single moment with the people so dear to our lives. I too lost a family member far too soon and as much as it tears at our hearts that these beautiful little creations are no longer with us physically they are with us each and everyday in our hearts and souls. I send you deep love and prayer from myself who prayed for little cora everyday. With much love, respect and blessings. Thank you for sharing Coras life. The world is a better place because of you. AMEN!

    ReplyDelete
  40. Michele, there are many people who wish to do something to honor Cora's life and spirit, please let me know if there is a way we can best do this. Many thoughts, prayers, and love are with you.

    ReplyDelete
  41. i have no words, only sadness. peace be with you.

    ReplyDelete
  42. Dear Bousquet Family,

    I have been reading from the beginning - a friend of Roz & others, & a sister-in-law to Melanie; we share people in common. We also share the effects of having a daughter born with a congenital heart defect. I have been cheering Cora on with the fierceness with which I cheer on my own daughter and it is with a deep, heavy sadness that I hear of your sweet Cora's passing. I am praying for peace for your family; I am sending hugs because sometimes there aren't any right words. I will continue my fierce cheering in honor of my daughter, Ruthie, and in memory of your beautiful girl, Cora.

    With all the love I have, from the mother of a child with CHD,

    Megan

    ReplyDelete
  43. So much love to you and your beautiful family. Prayers with you all and with Cora.

    ReplyDelete
  44. Michele, Jason, Cosie and Dom, I've been patiently waiting for a moment alone all day. I read of Cora's passing first thing this morning - and haven't had a chance to let the years flow until tonight. For months now, following your blog, I have prayed for healing. I spent the morning angry at God for not answering that prayer - and then, through the infinite patience and affection I've had with my own children today, He showed me just how much healing has come from Cora's life. For every home whose Cora's story touched - there is more love tonight, more forgiveness, tighter hugs, more joy, better perspective. The healing that God has demonstrated through Cora's sweet life is more widespread than our minds could ever imagine. There is not an unchanged person where Cora's name has been spoken. She lived a mighty life, and will continue on in her work as a Peace Ambassador to all who have followed her story. Thank you, Jesus, for welcoming a fine baby girl into your gates so that she can be free from struggle. I will continue to pray for your family as you navigate life with Cora's light. So much love.

    ReplyDelete
  45. I can't help but cry - for the beauty of Cora in this life, the beauty of your words as you share, Michelle, and the beauty of the love that envelopes you and your family, as well as those you have touched. Michelle, you are a true testament of how to walk through this life in grace. There is a piece of you and your family's journey forever embedded in my heart. Thank you.

    ReplyDelete
  46. We are touched and saddened and sending you peace and love,

    - Alan and Lynn

    ReplyDelete
  47. you have touched me and I have grown.......gratitude to you.

    ReplyDelete
  48. Dear Michele,
    My heart aches for you tonight. As your friends hold you up, please know that you have other friends, friends that you have never met and may never meet, but true friends nonetheless. I am one of those friends. As so many others have said, Cora has touched me, and I will continue to hold her in my heart. You are so very brave. You did what I, as a pediatrician and as a mommy, can only hope that I would have the strength to do, if I were in a similar situation. You listened to Cora, and you did what was truly best for her.
    Much love,
    Jen

    ReplyDelete
  49. We have been praying for Cora at Hillside Church of Marin. I am grieving for what you must be going for, but know she is at peace right. Bless you all....Isabelle Finney

    ReplyDelete